The Downs Syndrome Assossiation

Our aim

Helping people with Down’s syndrome to live full and rewarding lives

Who they are

They are the only organisation in this country focusing solely on all aspects of living successfully with Down’s syndrome. Since 1970, they have grown from being a local parent support group to a national charity with over 20,000 members, a national office in Teddington Middlesex, offices in Northern Ireland and Wales and a regional development team. Despite this, the organisation is run by a total staff of only 38 (many of them part time), and a network of around 100 regional volunteer-led support groups.

Our mission

• They provide information and support for people with Down’s syndrome, their families and carers, and the professionals who work with them.
• They strive to improve knowledge of the condition.
• They champion the rights of people with Down’s syndrome.

What they do

Our organisation is divided into various teams, including:

• Information - run the helpline; provide info about all aspects of living with Down’s syndrome including welfare, education and health; advise new parents or anyone experiencing difficulties
• Fundraising - responsible for raising money for the association through events, sponsorship and trusts
• Communications - give key messages to the media, public and professionals; influence policy making; reponsible for external publications
• Training - run courses throughout the UK for members, professionals and carers
• Membership - responsible for all administration surrounding new members, existing members and affiliated groups